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Parkinson's Disease Research Opportunity
  • Do you live in Gainesville, Ocala or the North Central Florida Area? 
  • Have you been Diagnosed with Parkinson's Disease? 
  • Have you suffered problems with motivation, initiation or productivity? 
  •  If so, you may be eligible to participate in an activity based intervention study. 
  • Read below:
Active Living in PD: The Parkinson’s Active Living (PAL) Program
 
Brief Purpose:
The purpose of this study is to evaluate the feasibility, acceptability, and effectiveness of a newly developed activity scheduling intervention on improving motivation, initiative, and quality of life in patients with Parkinson's disease (PD). The study will also investigate whether this intervention improves participants’ mood, quality of life, functional ability, and cognitive function, and whether it improves burden, depression, and marital satisfaction in spouses. Participants will complete one in-person session (2.5 hours) with a Program Coach/Researcher, at which time the participant will be guided through the identification of activity goals and planning. During this 6 week period, participants will follow their tailored 6-week Active Living program and will speak with their Program Coach by phone once per week (10-15 minutes per phone contact). Participants will complete some questionnaires before and after the study and will be encouraged to provide us with their input/feedback on the program.
Detailed Summary:
Parkinson’s Disease (PD) affects 600,000 to 1 million people in the United States alone. While motor dysfunction is most apparent in PD, apathy is one of the most common neuropsychiatric symptoms in PD, with an average estimated prevalence of 40-45%. Apathy is described in the neurologic literature as a reduction in self-initiation and motivation. Individuals may report that their “get up and go has gone up and went” or that they are less interested or less able to engage in activities. Elevated apathy has been associated with a host of negative consequences, including cognitive impairment, poor daily functioning, poor treatment compliance and illness outcome, and reduced quality of life. Further, this often results in increased burden and/or distress for spouses or caregivers. No studies have evaluated the efficacy of non-pharmacologic treatments of apathy in Parkinson’s patients despite the need for such research.
 
The purpose of this study is to evaluate the feasibility, acceptability, and effectiveness of a newly developed activity scheduling intervention on improving motivation, initiative, and quality of life in patients with Parkinson's disease (PD). The study will also investigate whether this intervention improves participants’ mood, quality of life, functional ability, and cognitive function, and whether it improves burden, depression, and marital satisfaction in spouses. Participants will complete one in-person session (2.5 hours) with a Program Coach/Researcher, at which time the participant will be guided through the identification of activity goals and planning. During this 6 week period, participants will follow their tailored 6-week Active Living program and will speak with their Program Coach by phone once per week (10-15 minutes per phone contact). Participants will complete some questionnaires before and after the study and will be encouraged to provide us with their input/feedback on the program.
 
Our research is a doctoral dissertation study conducted under the advisement and supervision of Dr. Cindy Cimino, Associate Professor, Depts of Psychology & Neurology, University of South Florida. The Institutional Review Boards of the University of South Florida AND of the University of Florida have approved this study.
Please call if interested or if you have any questions!
Inclusion criteria:
1. Diagnosed with Parkinson's disease (including any subtype or age of onset)
2. Experiencing difficulty with motivation, initiative, and/or productivity
 
Exclusion criteria:
1. Suspected dementia (i.e., severe cognitive impairment that interferes with patient's ability to manage independent activities of daily living, such as finances, medications, self-care)
2. Other neurological disorder (e.g., stroke)
3. Current psychotic disturbance (i.e., hallucinations)
Contact info:
Nasreen Sadeq (Research Assistant)
Alicia Chechele (Research Assistant)
813-974-7731
activeliving.pd@gmail.com
 
-OR-
 
London Butterfield, M.A. (Principle Investigator)
321-277-5422
activeliving.pd@gmail.com
 
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